John Holman was born at 29 weeks weighing 3lbs 2oz and 15 inches long on Feburary 8, 2007. John has been a fighter since the very beginning. He was diagnosed with focal right cystic encephalomalacia, intraventricular hemorrhage and periventricular leukomalacia. John was also born with cerebral palsy, he has an enlarged colon and takes three (3) pills a day to help it work. He had a colostomy bag and a button and catheters that his mother Sue would have to clean out herself. He has already had two (2) brain MRI’s, four (4) colonoscopies, five (5) colon surgeries, three (3) eye surgeries and two (2) surgeries to put tubes in both ears. He is only eight (8) years old.
I have had a chance to interview this family and I must say that John and Sue are very kind and humble in spite of what they are going through. He is a typical kid who just wants to have fun and to live a normal life, but what is normal? Our lives presents us with obstacles that are sometimes out of our control, but this family seems to turn the bad times into good. When I met John he gave me the biggest smile and it really lite up the room. Sue is doing all that she can with what is available to her. I know that by looking at the outer appearance of John he looks like everything is perfect but his body battles daily.
How can the community help this earth angel? Sue Holman has started an online fundraiser on John’s behalf on the gofundme site and it is amazing to see the heart of Sue that is so positive. You can see how John and her recharge off of one another’s strength. She is always looking out to encourage others and to raise money for other charities. This is why she and John feels the need to pay it forward, because they are walking in this journey every day and would like to make someone else’s journey a little bit more brighter. Sue has some medical bills and in need of some maintenance work done on her vehicle. The money will be used for their needs, medical insurance will not cover and extra help. With a lot of medical issues, John needs to see the neurologist again to see what is going on. He is a 3rd grader now but his mind and level is not there and it breaks his mother’s heart to see him suffer in many ways. Sue loves her son dearly, it hurts her to see him unhappy especially at times when he has to go back into the hospital for further test or surgeries. Even though John is going through this and is not alone, his mother at times feel that they do not have anyone but they have the community support. We can put a smile on Sue and John’s face by giving. The extra funds will help pay for extra tutoring and getting their car fixed to get him to his appointments. Any donations or shares and especially prayers are greatly appreciated thank you for your help and support!!
If you would like to help John and his mother meet this goal please click on gofundme.
***Update on John’s condition he will be having a EEG and MRI on his brain on December 15, 2015. It has come to my attention that he has been having silent seizures.
If you would like to send a card or write a letter please send it to:
9266 Leith Ave,
St. Louis, MO 63134
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